Buzz LightYear to the rescue

We finally get all the paper work completed for his “big” Evaluation with Damien Korb and dropped in at the centre to be sure they received it.  Within 10 minutes I receive a call to schedule an appointment, wow great news hopefully this will be the final piece in the puzzle to get the CPT code so that we can get help from the insurance company.  The date is set so fingers crossed.

Slight change to schedule this week.  Elliot has a field trip in the morning so we schedule the OT and SLT for after the trip in the afternoon.  Elliot is very excited to be going to see his therapists he really seems to be enjoying his sessions.  He takes great pleasure telling Miss Joyce that he had been sick in his bed at the weekend and proceeds to show her his buzz lightyear plaster also.  What difference a few sessions make he is very chatty compared to other sessions and warms up really quickly to Joyce.  She seems to have really tuned into what Elliot likes already and sets up a bucket swing for Elliot and they pretend that he is buzz lightyear.  He loves this idea and as he is swinging backwards and forwards he is given lots of different types of balls to get into the net on the wall.  After this another exercise to improve his balance and co-ordination, having him climb ladders and pretending to be in a castle so he can jump down again.  Which of course he thinks is great as he loves jumping.  As with other sessions he is nicely warmed up for his SLT sessions especially after the squishes Joyce gives him.

We now head to SLT with Miss Christie.   We recap from next week and discuss phonetics and letters of the alphabet.  It is difficult to be clear exactly what issues Elliot has with his speech as I spend so much time with him that I don’t always notice something right under my nose.  So I would agree it is far to say that the Speech and Language sessions are as much of a learning curve for me as Elliot.  It seems a lot of Elliots problems are not that he doesn’t know what to say there is just too much to say and he is struggling to access all the words together.  SO for instance when you ask him what he has done at school he wont really answer.  Miss Christie introduces us to a method of helping him access the information and get talking.  I guess it is a little like a mind map we start at the beginning of the day or a time when we know he is more receptive to sharing information with and draw pictures and work from there.  Also it starts to become more apparent that I am really not helping Elliot by finishing sentences for him or accepting a request with it being spoken correctly.  An example of this would be if he just points at something and says please.  Rather than accepting this I make him ask for what he wants.  If he isn’t very clear with his words I help him pronounce them and encourage him to describe things to me as well.  We go home with a few exercises to help Elliot strengthen his tongue again say L’s and words ending in LL

Oh crap – Olly = sicky boy :-(

We went out for a walk around to the Pediatric Therapy Services open evening around by the Good Samaritan Hospital.  There are lots of things that we can do with the boys during the summer months while school is out.  The challenge is that we already have a laundry list of things that Elly is signed up for, so it is now a case of ensuring that we don’t get involved in too many things etc.

Anyway, we got home, out of the pushchair and boom – poor Olly opened his floodgates and was sick on the garage floor etc.  The poor little mite was so upset.  He has been sick 3 more times since then so has managed to go through 3 sets of clothes.  We will be sleeping on the inflatable bed in his room to minimise the impact if he is sick during the night.

On the positive side, we have confirmation of the holiday house in Maui – we just need to make space on the credit card 🙂 and book the flights and car etc.

Almost booked our Maui vacation… :-)

We did our research on Sunday, contacted Kerrie on Monday (for confirmation) and are in the process of booking the August Maui trip 🙂  We decided to go for the smaller house (only three bedrooms) that has the terrific ocean view rather than no view but bigger house.  Think we will really appreciate this when we get there…..

Just picture the scene, Elliot and Olly in bed from an exhausting day in the pool and / or on the beach, the adults sat outside with a glass or three of vin rouge…… NICE.

Front view of the villa…..

Think this will be OK 🙂 The villa is booked and paid for – just need to sort flights and car rental.

Anyway, it has rained all week thus far, so we are really hoping for some sunshine.  Poor Elly got over the sickness only to find that the other end began to suffer 🙁 The issue is apparently going round the school with precision 🙁

Monday morning update

Monday morning starts off like any other Monday.  A quick prompt to remind Elliot that he has his play group with his friends, Hayden, Derek. Sameer, Miss Debbie and Miss Susan.  Elliot is definitely used to the idea of going to his session at TSSV however  I am still concerned that he is not taking part as much as he could.  I guess Elliots social issues are going to need a lot of attention.  In the meantime his notes from group session pretty much confirm the same as previous weeks:

Elliot: Session 7

  • Cheers: with structure and prompting, participated in activities. Continues to be quiet in group, but more engaged with peers and activities,  Really enjoys physical play
  • Challenge: maintaining group peer play, speaking to peers.

With this in mind we head to PTS for an open evening regarding summer sessions that they have available that might help Elliot.  Unfortunately it doesn’t seem that there are any sessions that will tie in with the TSSV session and the Maui holiday plus we decide that Elliot deserves a break over the summer.  It was a great opportunity none the less for Elliot to be able to show his Daddy where he goes to play on a Friday and for Simon to meet his Therapists.

The week is pretty much uneventful and I am having one of my many “am I imagining that Elliot has problems” until Thursday morning that is.  Whilst playing at home with his hot wheel cars he cuts his finger on the car launcher.  The cut on his is pretty minor it is near his knuckle so a little awkward and bleeds a little as he bends his finger but nothing to dramatic.  Not to Elliot though it is a really big deal and he gets so upset and is crying so hard he is almost screaming.  I pick him up and sit him on my knee and hug him really hard and try to sooth him.  I had a pain reliving spray that I manage to get on his finger in between the screams.  He has nearly calmed down that is until he bends his finger and it starts to bleed a little this really freaks Elliot out and the screams start up again.  I then have an idea we have lots of plasters if you’re American and reading this “Bandaids” ;o) some of which have Buzz Lightyear on.  I suggest to Elliot that Buzz Lightyear will sit on his finger and look after his cut and make it all better.  As Buzz is his hero he thinks this is a good idea, with the plaster in place we manage to get to a slight sob and within 5 minutes he has clamed down.  Phewee that was a 45 minute session over a tiny cut.  OK self doubt gone Elliot definitely needs this assessment so we can reassure ourselves that we are doing the right thing.  With all the upset Elliot has decided he is not going to school because his finger hurts too much.  It just goes to show that certain things really throw him off track.  I decided not to press the situation and told him that it would be a good idea to still go and with a little more encouragement I managed to get him to go at 12.15 as usual.  What a morning…..

Sicky Elliot Jack today :-(

Elly was up being sick at around 2am this morning sadly – not a great start to a Sunday.  This woke Olly, so we had two distressed children in the house for a while.  Poor Elly needed a bath and his bedsheets changing.  Mummy decided to sleep in with Elly on the inflatable bed just in case he needed help later in the night and Daddy won the Olly prize.

So, we have enjoyed a PJ day today since Elly was not really up to being outside, or certainly not this morning.  We had one further sickness episode at 8:30 and he has been fine ever since thankfully.

We are looking to book a Maui holiday in August (when Kerrie comes to visit) so have invested a couple of hours into the research while we have been house bound.  A day can make 300 USD difference just on the flights (so that is $1500 for the five of us – a significant difference).  We are looking for a house to rent that has wonderful views and is close to the beach (walkable in any case) – thank fully there seem to be a lot to chose from and they are not crazy money at the times that we are looking to go either.

We went down to the beach at Santa Cruz yesterday with Rich, Clare, Ben and Alex (Rich is a work colleague from the UK who has come over for three months to help build out the new development center here in Silicon valley for the company Simon works for) and typically it was less than 16 degrees Celsius and windy.  So, Simon managed to avoid sunburn for the first time on a beach visit, BUT obtained a wind burn to his face 😀  As always, the kids loved it although Olly was not allowed to go swimming / paddling this time around – he was not amused – clearly missed his uncle Tim.

The diet and fitness regime needs to start this week – we are definitely feeling a little overweight and under fit right now.  The beer has been removed from the fridge and the chocolate looks to be next on the list to be placed out of harms way…. 🙁