The first OT and SLT session

Today is our first OT and SLT session, at this stage I need to attend with Elliot and just sit and watch and try not to speak or interject.  Those of you who know me well will know that this is pretty hard as I love talking :o)  With Elliot’s best interests at heart I have to curb my desire to talk and ask lots of questions, I force myself to sit quietly.  We arrive early and sign in.  I have been spending the last few days discussing with Elliot that we were going to play with Miss Caroline (OT) in the gym and then Miss Christie (SLT) in her room with her Buzz Lightyear toys.  The therapists have recommend to keep the sessions light and not really make a big deal about the fact he is having therapy.  So instead we just say that we are going to play with the cool toys that they have.  Which is not a lie.  Elliot has his OT session in a gym that has various different types of swings, trampolines, balance boards, climbing walls, ladders, soft blocks and lots of different obstacles to challenge they kids with gross motor issues and lots of toys also to help with fine motor problems.  Anyway here lies a big whoops I hadn’t realised that we would not be seeing Caroline the therapist that did the assessment.  On arriving we find out that we are seeing someone else Miss Joyce.  Usually changes like this can really throw Elliot off.  I have a quick chat with Elliot to reassure him that this was totally fine and that I was sure we would have even more fun than we did with Caroline, fingers crossed.

The OT session starts and Joyce the new therapist introduces her self to Elliot.  Elliot is very reserved and takes a long time to move away from my side.  He speaks very quietly when spoken to and avoids eye contact completely and is really mumbling so much so Joyce really struggles to get anything out of him.  He starts to warm up a little to Joyce but is using mainly one word answers and trying his best to communicate without words.  Joyce does really well to get him to speak to her but still he is very “shy”.  She tries to get Elliot to use his “loud voice” something we have been encouraging him to do to speak a little louder,  with mixed results.  The session continues and Joyce encourages Elliot to do exercises that involve a lot of movement.  One of his favourite exercises were with the flip flop faces and bean bags.  He had lots of coloured cups that he had to throw bean bags into to turn the cups round whilst being pushed on a swing.  By the end of the session he was doing a lot better at responding to Joyce.

Next he heads in to the SLT with Christie, we wait for 5 minutes to be informed by the receptionist that Christie is unlikely to make it.  Elliot gets upset and bursts into tears I guess 2 unexpected events in one morning are a little hard to deal with.  The receptionist tells us that we are welcome to wait and we should be able to get  15 minute session with Christie she just wont be in time for the 30 minute session we had booked.  We decide to wait as Elliot was pretty upset.  Christie turns up and we start the session.  The SLT sessions are a little hard to get used to as we are just sat playing with toys answering questions and generally chit chatting.  I kind of struggle with this a little as I am thinking we are paying a lot of money to sit around chatting.  It soon becomes evident towards the end of the session that the questions re being asked for a reason and that Christie is already highlighting possible issues with Elliot.  When he talks he is blending words together and struggling to get out full sentences.  Things I had not realised until it was pointed out.  As we only have a short session Christie asks me to do a few exercises with Elliot and try to determine if he can pronounce each letter of the alphabet and if he can pronounce the phonetic equivalent.  We don’t think that these are particular issues, we think it is more of the phonetics when letters are blended together.  Christie asks him to do a few tongue exercises and feels that his speach issues maybe related to his tongue muscles not being developed properly this we will discover over the coming sessions.

All quiet in the house now our visitors have gone

We took Mum, Nard, Tim and Betty to the airport last night and saw them disappear into the bowels of the San Francisco airport – the guy that checked them in was a cyclist so he took a keen interest in Betty – he was very helpful in pointing out that because Betty was a “gift” then Tim did not need to spend the usual $200 to put it in the hold. A NICE result.

It has been great to have had the family here for the last two weeks and we will miss them terribly – Elliot even informed the Pizza delivery guy last night (yes we relented to having Papa Johns… 🙂 )that Grandma, Nard and Uncle Tim had gone back to England 🙂

It was REALLY quiet in the house last night without our visitors.  It was NICE however to be in our own bed – although the littlest Rust soon helped us with that by getting up at 11pm and pretty much demanding to sleep in mummy and daddy’s bed.

Olly is still not well with a temperature of over 40 degrees at 3:30am and sleep not appearing for him for nearly a further 2 hours.

We spoke with Tim and Mum earlier today and found that they arrived safely and cleared customs, picked up their bags and were on the Heathrow Express train heading into Central London in about 25 minutes – nice result.  only to find that hey still had to wait for 5 hours for the train back up North 🙁 Betty is safely in the UK, ready to be built up again in prep for the first UK ride 🙂

We went out for a cycle ride tonight and head out in a direction that we have not gone before – towards Campbell – all in all a nice leisurely 7.4mile ride with 15 minutes at a park for the boys in the middle.  We clearly need to get back into the cycling to help with our fitness levels and lard reduction – the programme starts here 🙂

Finally, making progress

Elliot is still going to his TSSV sessions on a Monday morning without any complaint.  He has attended 6 sessions now and I am not sure whether we are making a huge amount of progress yet.  I am feeling pretty guilty as we get lots of follow up work to do outside of school and I don’t always get a chance to do it all.  His session notes don’t seem to be changing much maybe this  this week I get around to doing more.

Elliot: Session 6

  • Cheers: participated with encouragement, imitated peer ideas.  Loved the marble run! Really participated with the marble run and helped figure out the problem and fix it.
  • Challenge: maintaining group peer play, speaking to peers.

Firstly I think we need to get a recommendation for a good mental health professional in the area.  I have heard of Damien Korb and I am thinking he might be a good place to start.  I check in with the PTS therapists and they highly recommend him.  So here starts my next mission to get an appointment slot.  I contact the centre for developing minds who take our details and mail out an information pack.  The paperwork arrives a few days later and I am greeted by what seems to be pretty standard statements referencing payments.  These companies will NOT deal with insurance companies and you MUST pay for their services directly.  This is not giving me  a warm feeling about getting any help towards any of this treatment for Elliot.  Up until now the sessions have been costing around $150 but this one is really going to hike up the tally @ $600.  Hope this guy is worth it.  With all these escalating costs and no sign of help from the insurance company we will soon need to ask a very serious question of our selves.  “Can we afford to live here?”  We have a couple of avenues to explore before we get there but these are very real questions when the few sessions we have been to and have organised are totalling nearly $5000.  Fingers crossed we find a way around the blocks the insurance company are putting up.  I have a strange feeling that the old insurance company would have covered Elliot but AppSense changed providers this year.  I need to see if I can find out.  Hmmm…….another project .

Happy Birthday Oliver David – 2 today

Oliver’s big day today – 2 years old already.  He wanted to celebrate by spending time with family on the beach in Santa Cruz. It has been a really nice hot day (even in Santa Cruz) and Tim, Mum, Simon and Nard have all been victims of the sun – Mum being the worst and Simon who has for once almost got away with it.

Oliver received lots of nice cards and some cool presents – thank you everybody who has sent things through for Oliver – he really appreciated everything and has not stopped playing with his new toys (well, except for when he was on the beach 🙂 )

Tim collected his new bike tonight so we guess that he will be up early doors tomorrow out on the trails….

San Francisco bound day

Tim has invested a lot of time in researching Specialized, YETI, Santa Cruz and Trek mountain bikes over the weekend and on Monday ordered the Yeti 575 bike.  It is being courier shipped from Colorado from Monday afternoon / Tuesday morning, and the local shop – Trail Head Cyclery are building it up for him.  Excited does not cover the Tim’s mood right now… 🙂

So, today we all head out to San Francisco at 8am, with Tim running over the Golden Gate Bridge first thing, then running up and around (down) Lombard street – the world’s crookedest road.  Then, Mum, Nard and Tim all head out on the boat from pier 33 to Alcatraz.

While they visited the rock, we went into San Francisco  and Vicky bought her first pair of Christian Louboutin shoes – they are very nice and hopefully pave the way for Simon to buy a Santa Cruz mountain bike 😉

We are finishing the day with Krispy Kreme doughnuts and a few sausages on the grill and beer 🙂

Not sure what we are doing tomorrow yet, except Mum is going to school to help with Vicky in the afternoon.  Friday is the big 2nd birthday, so we are heading to the beach…..